A qualitative study with 10 UK hospice healthcare professionals found that digital legacy management needs to be integrated into advance care planning, requiring increased awareness among professionals to address patient needs effectively.
Palliative Medicine · 4 authors, 6 centres
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A qualitative study with 10 UK hospice healthcare professionals found that digital legacy management needs to be integrated into advance care planning, requiring increased awareness among professionals to address patient needs effectively.
This constructivist grounded theory study explored the experiences of 10 multidisciplinary palliative care healthcare professionals in a single UK hospice regarding digital legacy management. Semi-structured interviews were conducted and analyzed to develop a theoretical model. The findings revealed four key categories—accessing digital legacy, integrating it into advance care planning, impacting grief and bereavement, and raising awareness—revolving around a core theory of 'understanding the impact of digital legacy.' Professionals viewed digital assets as important as physical assets but reported limited knowledge about post-death account management. Limitations include a single-site, non-generalizable sample and potential researcher-participant familiarity bias. The implications call for increased education and societal awareness to manage digital assets effectively.