JPGN Reports · 12 authors, 9 centres
This summary was generated by AI from a single paper. It has not been reviewed by a clinician and is not clinical advice. Verify against the source before acting on it.
This multi-center cohort study validated the IBD-KID2 tool for measuring disease-related knowledge in children with IBD and their family members across three countries. The central finding is that the tool is valid and generalizable, and knowledge levels follow a consistent hierarchy: mothers, fathers, children with IBD, then siblings.
This external validity study used the IBD-KID2 tool to assess disease-related knowledge in a cohort of children with IBD and their mothers, fathers, and siblings across three geographically diverse countries. The results confirmed IBD-KID2 as a valid, reliable, and generalizable tool. Knowledge scores showed a consistent hierarchy: mothers had the highest scores, followed by fathers, then children with IBD, and siblings with the lowest scores. A significant correlation was found between the scores of children with IBD and their mothers. Sibling scores did not correlate with either parent and were positively associated with increasing age. Limitations include the focus on English-speaking developed countries and the potential for parental assistance in children's assessments. The study establishes benchmark scores and highlights that siblings may have knowledge gaps, suggesting they could benefit from targeted education.
