JPGN Reports · 8 authors, 1 centre
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This case series describes a 2-stage CT-guided celiac plexus blockade procedure in 5 children with severe neurodisability and life-threatening feed-induced dystonia. A positive outcome was observed in 3 out of 4 cases where the primary issue was feed-induced dystonia.
This retrospective case series from a single tertiary pediatric hospital evaluated a 2-stage CT-guided celiac plexus blockade (temporary followed by neurolysis) in 5 female children aged 7-17 years with severe neurodisability and refractory feed-induced dystonia (FID) or intestinal failure. The intervention was offered after other therapies failed. A total of 10 procedures were completed. A positive outcome was observed in 3 out of 4 cases specifically for feed-induced dystonia, and 2 of 3 patients on parenteral nutrition showed improved feed tolerance post-procedure. All children tolerated the procedure with no documented complications. The study highlights that this compassionate therapy may be considered for selected children with life-threatening symptoms when standard palliative and analgesic treatments have been exhausted.
