JMIR Dermatology · 5 authors, 7 centres
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A participatory design study involving patients with psoriasis, health care professionals, IT designers, and researchers iteratively co-developed an mHealth app to support self-management and replace or supplement in-person follow-up visits. The resulting prototype incorporated video consultations, self-monitoring, and patient-reported outcome registration, though health care professionals expressed reluctance about video consultations compared with patients' enthusiasm.
This study used participatory design to iteratively develop an mHealth app for patients with psoriasis on biological treatment. A multidisciplinary team of patients, health care professionals (HCPs), IT designers, and researchers conducted one future workshop, four mock-up workshops, and one prototype test. Data were analyzed using plan, act, observe, and reflect steps. The future workshop revealed that patients perceived consultations as impersonal and repetitive, preferred not to attend in-person visits every 3 months, and wanted to contribute to the consultation agenda. HCPs expressed concern about losing nonverbal communication cues during video consultations, while patients found video consultations suitable and convenient. The app prototype included video consultations, self-monitoring, and patient-reported outcome data registration. A technological medication delivery system could not be implemented due to regional regulatory and policy constraints. A key limitation was that only one of three invited patients participated in the prototype test; a HCP acted as a patient substitute. This was a small, single-center study, which may limit transferability.
