International Journal of Environmental Research and Public Health · 8 authors, 4 centres
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This study co-created a Massive Open Online Course (MOOC) for women with breast cancer to improve digital health literacy and person-centred care through a participatory design process. Participants reported positive experiences, but the study is limited by a small sample size and lack of effectiveness evaluation.
Breast cancer is a common cancer in women, with high survival rates but significant impact on quality of life. There is a need for interventions to enhance digital health literacy (DHL) and person-centred care (PCC) to support patients in managing health information and decision-making. Methods: The study used a co-creation approach based on a modified experience-based design. It involved 19 participants: 17 women with breast cancer or survivors and 2 healthcare professionals (nurses). The process included three phases: exploratory, development, and evaluation, conducted online via Zoom and Moodle due to COVID-19. Participants engaged in sessions to develop a Patient Journey Map and MOOC content, with feedback collected through questionnaires. Key Results: Participants had positive experiences in the co-creation process, with 89.47% responding to the experience questionnaire and high satisfaction scores. The acceptability pilot, with 7 participants, showed good ratings for MOOC language, content, and design. The Patient Journey Map identified information and empowerment needs across diagnosis, treatment, and follow-up stages. Limitations: The study had a small sample size, online sessions may have limited interaction, only two healthcare professionals participated, and most patients had higher education. There is a need for independent evaluation and effectiveness testing. Implications: Co-creation of MOOCs can improve the relevance of educational resources for breast cancer patients, potentially enhancing DHL and PCC. However, further research is required to assess the actual impact on health outcomes.
