JPGN reports · 5 authors, 5 centres
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This case report describes a 14-year-old with hypermobile Ehlers-Danlos Syndrome who required intensive, multidisciplinary inpatient rehabilitation to manage severe feeding difficulties and avoid surgical feeding tube placement. The intervention successfully restored the patient's ability to meet all nutritional needs orally.
This is a case report of a 14-year-old patient with hypermobile Ehlers-Danlos Syndrome, postural orthostatic tachycardia syndrome, and functional gastrointestinal symptoms who presented with significant weight loss and inability to tolerate oral feeds. Over a 10-day hospitalization, the patient was advanced from intravenous fluids to a full oral diet. At a 14-month follow-up, the patient maintained oral nutrition, gaining 19 pounds with a BMI improvement from 19 to 22. The authors propose that such intensive, symptom-based, multimodal rehabilitative approaches should be attempted before surgical feeding interventions in similar EDS patients.
