Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic

Acta Myologica · 4 authors, 1 centre

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TL;DR

A survey-based study assessed the feasibility and acceptability of telehealth for neuromuscular patients during the COVID-19 pandemic. The central result was that telemedicine was rated satisfactory by the majority of patients, caregivers, and healthcare providers.

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This study evaluated telehealth for neuromuscular care via online surveys of 46 patients or caregivers and 7 healthcare providers following visits. Results indicated high satisfaction: 65.22% of neuromuscular patients/caregivers were strongly satisfied, and 52.17% would strongly agree to participate again. Commonly addressed clinical issues included medication management and test ordering. A predictive model found younger age was a factor for higher satisfaction. The findings suggest telemedicine was feasible and acceptable for delivering personalized care during the pandemic.

STUDY TYPE

cohort

SPECIALTY

neurology

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100% · A

ORIGINAL PAPER

PMC10115397

Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic

Acta Myologica

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ABSTRACT

Abstract Objectives The aim of the present study was to evaluate the feasibility and acceptability of telehealth for the care of neuromuscular patients during the COVID-19 pandemic. Methods Neuromuscular patients or their caregivers, as well as health care providers (HCPs), who completed a televisit during the pandemic received an online survey, assessing satisfaction with the visit, quality of care, and experience with the televisit interference. Results Surveys from 46 neuromuscular patients (including 18 with motor neuron disease [MND])/caregivers and 7 HCPs were completed. Several aspects of televisits including good communication, adequate time to discuss concern, provision of equal care, and telemedicine interference were rated favorably among participants. Telehealth was strongly satisfactory in 30 (65.22%) and satisfactory in 15 (32.61%) neuromuscular patients/caregivers. In 18 MND patients, this was 10 (55.56%) and 7 (38.89%), respectively. Moreover, 24 (52.17%) neuromuscular patients/caregivers would strongly agree and 18 (39.13%) would agree to participate again in televisits. This was 10 (55.56%) and 4 (33.33%) for MND cases, respectively. Various medical issues were addressed during the televisits including medication management, ordering tests/referrals, discussion of goals of care, and research. The predictive stepwise logistic model found younger age as a predicting factor for higher satisfaction from, or participation again in, televisits in neuromuscular patients. Limb onset location was also a predicting factor for strong satisfaction from televisits in MND cases. Conclusions Telemedicine is feasible and highly effective at achieving personalized care that was rated satisfactory by the majority of neuromuscular patients/caregivers and HCPs during the COVID-19 pandemic. Key words: telemedicine, televisit, neuromuscular clinic, amyotrophic lateral sclerosis (ALS), motor neuron disease (MND), COVID-19

CITATION EXPORT

Mehdi Ghasemi, Kristy Poulliot, Kate M Daniello et al.. Experience with telemedicine in neuromuscular clinic during COVID-19 pandemic. Acta Myologica. (2023). https://doi.org/10.36185/2532-1900-245

AUTHORS

4 · 1 CENTRES

Mehdi Ghasemi, Kristy Poulliot, Kate M Daniello, Brian Silver

1Department of Neurology, UMass Chan Medical School, Worcester, MA, USA