Experiences of persons with multiple sclerosis of a collaborative care programme: A qualitative study

Nursing Open · 5 authors, 6 centres

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TL;DR

This qualitative study interviewed 18 individuals with multiple sclerosis to understand their experiences with a collaborative care programme.

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This qualitative study used semi-structured interviews and conventional content analysis to explore the experiences of 18 patients with multiple sclerosis in a collaborative care programme in Iran. Limitations noted by the authors include the small sample size from a prior quantitative study, which may limit generalizability, and potential influence from cultural differences. The findings suggest collaborative care is perceived as a systematic, logical process that can inform the development of supportive interventions for people with MS and other chronic diseases.

STUDY TYPE

other

SPECIALTY

neurology

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AI pipeline

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100% · A

ORIGINAL PAPER

PMC10416042

Experiences of persons with multiple sclerosis of a collaborative care programme: A qualitative study

Nursing Open

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ABSTRACT

Abstract Aim This study aimed to explain the experiences of individuals with multiple sclerosis (MS) about the collaborative care programme. Design This qualitative study was conducted from July 2021 to March 2022. Methods We conducted this study with individuals with MS who participated in the collaborative care programme in Hamadan, Iran. A purposive sampling with maximum variety was applied to recruit patients until data saturation. Eventually, 18 patients consented and were interviewed using a semi‐structured interview guide. The transcriptions of audio‐checked interviews were analysed using a conventional content analysis approach of Graneheim and Lundman by MAXQDA 10, 2010 edition. Results The study identified three main categories. that emerged from the participants' experiences of collaborative care: the ‘Beginning of Communication’, which included two subcategories, ‘Introduction and Acquaintance with Each Other’ and ‘Formation of Trust’; ‘Mutual Interaction’, which included three subcategories, ‘Dialogue’, ‘Mutual Goal Setting’ and ‘Mutual Agreement of Care Solutions’; and ‘Exchange of Targeted Behaviors’, which included six categories, Implementation of Strategies for ‘Nutritional Behaviors’, ‘Sleep and Rest’, ‘Constipation Relief’, ‘Promotion of Physical Activity and Exercise’, ‘Fatigue Reduction’ and ‘Stress Management’. Conclusions The findings highlight the statistically significant role of collaborative care in MS management. Utilizing these research findings can update the development of interventions based on collaborative care, which can provide appropriate support to individuals with MS. Patient or public contribution Individuals with multiple sclerosis.

CITATION EXPORT

Firuzeh Payamani, Seyed Reza Borzou, Alireza Soltanian et al.. Experiences of persons with multiple sclerosis of a collaborative care programme: A qualitative study. Nursing Open. (2023). https://doi.org/10.1002/nop2.1893

AUTHORS

5 · 6 CENTRES

Firuzeh Payamani, Seyed Reza Borzou, Alireza Soltanian, Masoud Ghiasian, Mahnaz Khatiban

1 Social Determinants of Health Research Center Aligoudarz School of Nursing Lorestan University of Medical Sciences Khorramabad Iran
2 School of Nursing and Midwifery Hamadan University of Medical Sciences Hamadan Iran
3 Chronic Diseases (Home Care) Research Center Department of Medical‐Surgical Nursing School of Nursing and Midwifery Hamadan University of Medical Sciences Hamadan Iran
4 Modeling of Noncommunicable Diseases Research Center Hamadan University of Medical Sciences Hamadan Iran
5 Department of Neurology Medical School Hamadan University of Medical Sciences Hamadan Iran
6 Mother and Child Care Research Center, Department of Ethics Education in Medical Sciences Department of Medical‐Surgical Nursing School of Nursing and Midwifery Hamadan University of Medical Sciences Hamadan Iran