Health and Quality of Life Outcomes · 5 authors, 1 centre
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This systematic review of 69 studies identified barriers to implementing person-centred outcome measures (PCOMs) in paediatric healthcare—including staff knowledge gaps, measure complexity, and resource constraints—and facilitators such as staff and family education on measure use and benefits. A logic model was developed to guide context-specific implementation strategies.
This PRISMA-reported systematic review (PROSPERO CRD 42022330013) searched CINAHL, Embase, Medline, PsycInfo, and Google Scholar, retaining 69 studies across primary (n=14), secondary (n=13), tertiary (n=37), and community (n=8) paediatric healthcare settings. Data were thematically analysed using the adapted Consolidated Framework for Implementation Research (CFIR). Studies included both child self-report (n=46) and parent-proxy (n=47) measures. Key barriers included staff lack of knowledge about how measures improve care, complexity of using and implementing measures, and insufficient resources including funding and staff. Key facilitators included educating and training staff and families on measure use, the advantages of PCOMs over current practice, and their benefit for patient care and outcomes. Three CFIR sub-constructs had no identified data (trialability, individual stage of change, reflecting and evaluating). Limitations include potential gaps in the identified CFIR domains and that most evidence comes from higher-income countries. The resulting logic model illustrates how strategies can address barriers and support PCOM implementation.
