Journal of Alzheimer's Disease · 5 authors, 3 centres
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A cross-sectional web-based survey of people with dementia and their family members in Finland in spring 2021 found that the pandemic reduced meaningful activities and social contacts, declined physical and/or mental well-being, and restricted rights to meet others and freedom of movement among people living with dementia.
This cross-sectional web-based survey was conducted in spring 2021 in collaboration with the Alzheimer Society of Finland among people with dementia (n=31) and their family members (n=168). Participants completed 13 survey items covering well-being, restrictions on freedom, access to services, information on pandemic regulations, and problems with authorities. According to respondents, the pandemic had reduced meaningful activities and decreased meetings between people with dementia and others. Many reported a decline in physical and/or mental well-being and greater difficulty accessing social and health services. Over a third found that the right to meet people was restricted, and almost half viewed freedom of movement as restricted. Results highlight the need to consider negative effects of mobility and social contact restrictions on the well-being of people living with dementia in future policy and legislative reform.
