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TL;DR
An online survey of UK women with metastatic breast cancer found significant gaps in information, support, and understanding of their illness, which negatively impacted their daily activities and quality of life.
Supportive Care in Cancer · 10 authors, 4 centres
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An online survey of UK women with metastatic breast cancer found significant gaps in information, support, and understanding of their illness, which negatively impacted their daily activities and quality of life.
The survey assessed communication, support needs, and quality of life using the Patient Roles and Responsibilities Scale. Results showed a serious impact on most respondents' caring abilities and social lives. A majority (71%) wished they had known more about MBC before diagnosis, and 47% indicated they still did not fully understand their illness. Only 56% had access to a specialist nurse, and 51% had been offered additional support. Respondents reported inconsistent information, support, and continuity of care. The study concluded that gaps in support, communication, and information exacerbated the negative impact on daily living.