SEARCHSYSTEMATIC_REVIEWneurology, geriatrics

systematic_review·neurology, geriatrics, internal medicine, systematic review, family medicine·PMC10336605

Models of care for people with dementia approaching end of life: A rapid review

Palliative Medicine · 7 authors, 3 centres

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TL;DR

This rapid review identified twelve dementia-specific models of end-of-life care from the literature. The central finding is that while best-practice principles are known, there are limited examples of them being translated into fully integrated and evaluated models of care.

Full summary

568 CHARS

This was a rapid review with narrative summary of peer-reviewed and grey literature published between January 2000 and April 2022. It aimed to identify best-practice care models for people with advanced or end-stage dementia and their families. Nineteen articles describing twelve models were included. Key issues identified were referral/admission, care integration, sustainability, and evaluation. The conclusion is that no comprehensive, fully integrated, sustainable model was found, but the models provide valuable evidence for developing context-responsive care.

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systematic_review

SPECIALTY

neurology

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100% · A

ORIGINAL PAPER

PMC10336605

Models of care for people with dementia approaching end of life: A rapid review

Palliative Medicine

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ABSTRACT

Abstract Background: People with dementia have different care and support needs at their end of life compared to people with other life-limiting illnesses, and general palliative care models may not meet the needs of people with dementia and their carers and families. Some dementia-specific end-of-life care models have been implemented, and a summary of existing models was undertaken to inform development of a local model. Aim: To identify best-practice models of care for people in the advanced and end stages of dementia, and their families and carers. Design: A rapid review with narrative summary of peer-reviewed articles and grey literature was conducted. Data sources: Ten databases were searched for articles published between January 2000 and April 2022. Inclusion criteria were: all care settings; AND the model focuses on people with end-stage or advanced dementia; AND contained multiple components. Results: Nineteen articles or reports, describing twelve dementia-specific models of end-of-life care in a range of care settings were identified for inclusion in the review. There is strong evidence that the principles of best practice palliative care for people with advanced dementia are well known, but limited examples of translation of this knowledge into integrated models of care. The key issues that emerged from the findings were: referral and admission to care, integration of care, sustainability and evaluation. Conclusions: Findings can be used to inform development of improved end-of-life care pathways for people with dementia, but well-designed research studies are needed to evaluate the effectiveness of integrated models of care for this vulnerable population. Keywords: Dementia, palliative care, integrated care, patient-centred care, review, model of care, end-of-life care

CITATION EXPORT

Suzanne Lewis, Zoi Triandafilidis, Cassie Curryer et al.. Models of care for people with dementia approaching end of life: A rapid review. Palliative Medicine. (2023). https://doi.org/10.1177/02692163231171181

AUTHORS

7 · 3 CENTRES

Suzanne Lewis, Zoi Triandafilidis, Cassie Curryer, Sarah Yeun-Sim Jeong, Nicholas Goodwin, Sally Carr, Daneill Davis

1Central Coast Local Health District, Gosford, NSW, Australia
2Central Coast Research Institute (CCRI) for Integrated Care, University of Newcastle, Callaghan, NSW, Australia
3School of Nursing, University of Sydney, Sydney, NSW, Australia