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TL;DR
The central result identified five key patient concerns: difficulty finding information, psychosocial problems, treatment dissatisfaction, lack of social support, and low quality of life.
Quality of Life Research · 6 authors, 4 centres
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The central result identified five key patient concerns: difficulty finding information, psychosocial problems, treatment dissatisfaction, lack of social support, and low quality of life.
The most prevalent theme, at a mean share of 51.4% of posts, was patients seeking disease information. This was followed by psychosocial problems at 23.5%, treatment-related challenges at 14.2%, low quality of life at 6%, and lack of social support at 4.9%. The analysis revealed patients face significant challenges with self-diagnosis, emotional distress, stigma, and dissatisfaction with treatment options. The findings aim to improve doctor-patient communication and inform medical policy by providing a patient-centric perspective.