Self-management challenges and support needs among patients with primary glaucoma: a qualitative study

BMC Nursing · 8 authors, 2 centres

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TL;DR

This qualitative phenomenological study used semistructured interviews with 20 primary glaucoma patients to identify self-management challenges and support needs. Participants reported challenges across medical, emotional, and social domains, and expressed needs for personalized health information, psychological support, social support, and daily living support.

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Interviews were analysed using Colaizzi's method, with thematic saturation reached after 15 interviews and confirmed with five additional interviews. Participants identified challenges including becoming an expert in glaucoma, managing negative emotions, adapting to daily life changes, and resuming social activities. Four support need themes were identified: health information support, social support, psychological support, and daily living support. All participants desired personalized information and care, and expressed reluctance to passively comply with instructions, preferring collaborative partnerships with physicians. Findings suggest healthcare professionals should deliver targeted, personalized, and comprehensive self-management interventions.

STUDY TYPE

other

SPECIALTY

glaucoma

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AI pipeline

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ORIGINAL PAPER

PMC10644434

Self-management challenges and support needs among patients with primary glaucoma: a qualitative study

BMC Nursing

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ABSTRACT

Background Self-management plays an important role in the disease management of glaucoma patients. The effectiveness of the program can be improved by assessing the patient’s perspective and needs to tailor self-management support. Most studies have focused on assessing one of these self-management behaviours, such as medication adherence, and there is a lack of systematic assessment of the support needs and challenges of self-management for patients with glaucoma. Therefore, in this study, we conducted an in-depth investigation into the self-management challenges and support needs of patients with primary glaucoma, providing a basis for nursing staff to implement self-management support. Method The phenomenological method and semistructured interviews were used in this study. A total of 20 patients with primary glaucoma were recruited between June and December 2022. Colaizzi’s analysis method was used to analyse the interview data. Results Challenges for patients include becoming an expert in glaucoma, managing negative emotions, adapting to daily life changes and resuming social activities. To address these challenges, four themes of patient self-management support needs were identified: (1) health information support, (2) social support, (3) psychological support, and (4) daily living support. Conclusion Patients with primary glaucoma experience varying degrees of challenge in dealing with medical, emotional, and social aspects. Comprehending the support needs of patients, healthcare professionals should deliver targeted, personalized and comprehensive self-management interventions to enhance their capacity of patients to perform self-management and improve their quality of life. Supplementary Information The online version contains supplementary material available at 10.1186/s12912-023-01527-y.

CITATION EXPORT

Yiting Hua, Hujie LU, Jingyao Dai et al.. Self-management challenges and support needs among patients with primary glaucoma: a qualitative study. BMC Nursing. (2023). https://doi.org/10.1186/s12912-023-01527-y

AUTHORS

8 · 2 CENTRES

Yiting Hua, Hujie LU, Jingyao Dai, Yewei Zhou, Wenzhe Zhou, Aisun Wang, Yanyan Chen, Youping Liang

1https://ror.org/00rd5t069grid.268099.c0000 0001 0348 3990School of Ophthalmology and Optometry, Wenzhou Medical University, 270 West Xueyuan Road, Wenzhou, Zhejiang 325027 China
2https://ror.org/00rd5t069grid.268099.c0000 0001 0348 3990National Clinical Research Center for Ocular Diseases, Eye Hospital, Wenzhou Medical University, 270 West Xueyuan Road, Wenzhou, Zhejiang 325027 China