Journal of Patient-Reported Outcomes · 3 authors, 3 centres
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This scoping review analyzed 34 studies to model the self-management tasks and skills for patients with a tracheostomy at home. It found that patients must manage their therapeutic regimen, role and behavior changes, and emotions, with the most evidence focused on the first two areas.
This scoping review synthesized 34 publications (24 quantitative, 8 qualitative, 2 mixed methods) from 17 countries, published since 2000, using the PRISMA-ScR and JBI framework. Data were coded based on the self-management model by Lorig and Holman, focusing on three dimensions: managing the therapeutic regimen, managing role and behavior changes, and managing emotions. The analysis found that 28 articles reported on the therapeutic regimen, 27 on role/behavior changes, and 16 on emotions. Most studies included patients with a permanent tracheostomy after laryngectomy, often more than six months post-surgery. The review identifies that while tracheostomy care is essential, it was reported to a lesser extent (n=6). Limitations include the potential for bias from single-person data abstraction and the exclusion of studies not clearly describing the target population. The authors conclude that the developed model provides a comprehensive overview for future intervention studies.
