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This qualitative study interviewed 14 Black cardiomyopathy patients and found that more than half experienced intersectional stigma manifestations from healthcare providers, which impacted their access to care, trust, and adherence to medical recommendations.
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This qualitative exploratory study used semi-structured interviews with 14 Black cardiomyopathy patients at a single academic medical center to describe experiences with intersectional stigma in cardiac and genetic care. Interviews, informed by the Health Stigma and Discrimination Framework, explored stigma related to race, age, and weight. Findings indicated that over half of participants reported stigma manifestations, including provider roughness, withholding information, impersonal care, coercion, and stereotyped language. These manifestations were reported to adversely affect outcomes such as access to care, timeline to diagnosis, patient-provider trust, and adherence to recommendations. Limitations include a small, non-random sample from one institution in the Southeastern U.S., potential researcher bias, and unclear timing/location of some reported events. The study suggests a need for provider education and culturally competent care but does not establish causality.
