Pharmacy · 3 authors, 2 centres
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A qualitative interview study of 45 UK patients receiving home parenteral therapy found generally positive experiences but wide variation in training and support received, with patients reporting periods of doubt where quick access to professional advice was needed. An education session produced reliable positive changes in six of eight heiQ domains.
This qualitative observational study explored the experiences of UK patients receiving home parenteral therapy (HPT) through semi-structured telephone interviews conducted between April 2020 and October 2021, analysed using inductive thematic analysis. Of 640 patients invited, 45 (7%) completed the interview and education session. Participants also completed the Health Education Impact Questionnaire (heiQ) before and after an education session. Thematic analysis revealed generally positive patient experiences with HPT, but wide individual variation in the training and support received, with some patients reporting inadequate training on injecting techniques and lack of competency assessment. Patients experienced periods of doubt and uncertainty and valued quick access to professional advice. The heiQ showed reliable positive change (10.5–18.4%) in six of eight domains and moderate change in two domains after the education session. The authors conclude that training and preparation standards should be optimised across hospitals and the wider NHS, recommending a structured, standardised training package on a national level.
