Supportive Care in Cancer · 7 authors, 3 centres
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This mixed-methods study of 21 childhood cancer patients and families in New Zealand found that families experience significant distressing nutrition challenges during treatment, such as fussy eating and weight loss, and have mixed perceptions of enteral nutrition support.
This mixed-methods study at a specialist paediatric oncology centre in Auckland, NZ, investigated the experiences and preferences of 21 childhood cancer patients and their families regarding nutrition support during treatment. Participants completed a questionnaire and underwent semi-structured interviews. Qualitative analysis revealed four key themes: patients experience distressing nutrition challenges; families have mixed perceptions of enteral nutrition; there are gaps in the current support system; and a desire for more accessible support. Limitations include potential sampling bias, as families with particularly distressing experiences may have been more likely to participate, and the exclusion of patients too unwell to participate. The study concludes that standardising nutrition information through tools like a decision aid could optimize support and reduce discordance between families and health professionals.
