Medicina · 4 authors, 5 centres
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Qualitative focus groups with Australian people with endometriosis found that participants prioritize research into non-invasive diagnosis, non-hormonal treatments, and understanding the cause of endometriosis, and report willingness to participate in research motivated by expected symptom relief, though barriers such as time commitment and travel costs were identified.
unmet research needs and motivators and barriers to research participation. Participants expressed strong desire for non-invasive diagnostic methods, a wider range of non-hormonal and non-surgical treatments, and research into the cause and cure of endometriosis, including interest in medicinal cannabis and holistic approaches such as acupuncture and herbal medicine. These priorities diverge from previous researcher-driven recommendations, which have largely focused on improving existing tools or treatments. Barriers to participation included high time commitment and cost, with younger participants particularly noting treatment costs. Motivators included expected symptom relief and a desire to help others. Limitations include that recruitment was restricted to Australians and via social media, which may bias toward those with more severe symptoms, though consistency with international findings suggests limited impact on generalizability.
