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other·geriatrics, public health, family medicine, internal medicine, research methods·PMC10632619

Who cares for the carer? Codesigning a carer health and wellbeing clinic for older care partners of older people in Australia

Health Expectations : An International Journal of Public Participation in Health Care and Health Policy · 13 authors, 12 centres

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TL;DR

The panels reached general consensus on a flexible, one-stop-shop model incorporating health evaluation, allied health, counselling, and streamlined referral pathways.

Full summary

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This qualitative study applied codesign principles within focus-group methodology to engage a purposeful sample of older care partners, health professionals, researchers, policy makers, and health service administrators across three remote video-conferencing panels. Sixteen stakeholders participated, with thirteen attending all three panels. Four themes were derived: naming and framing, desired outcomes, the care ecosystem, and service delivery and providers. Panellists identified health evaluation and interventions as a starting point, followed by counselling and psychological support, allied health inputs, and links to respite and tertiary referral. The preferred model is a flexible one-stop-shop clinic focusing on health promotion, individualised assessment, practical sessions, education, and streamlined service pathways. Limitations include that participants were situated within specific state or jurisdictional contexts, which may constrain generalisability, and that views obtained were not exhaustive. The resulting principles are intended to inform service reform for supporting older care partners.

STUDY TYPE

other

SPECIALTY

geriatrics

SUMMARISED BY

AI pipeline

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100% · A

ORIGINAL PAPER

PMC10632619

Who cares for the carer? Codesigning a carer health and wellbeing clinic for older care partners of older people in Australia

Health Expectations : An International Journal of Public Participation in Health Care and Health Policy

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ABSTRACT

Abstract Introduction Older carers or ‘care partners’ of older people experiencing care needs often provide essential support, at times while neglecting their own health and well‐being. This is an increasingly frequent scenario due to both demographic changes and policy shifts towards ageing in place. Multiple community stakeholders within the care and support ecosystem hold valuable expertise about the needs of older care partners, and the programme and policy responses that may better support their health and well‐being. The aim of this study was to identify the perspectives of stakeholders obtained through the codesign phase of a multicomponent research project investigating new models of care and support for older care partners suitable for the Australian context. Methods Principles of codesign were used to engage a purposeful sample of older care partners, health professionals, researchers, policy makers and health service administrators. Participants took part in a series of three codesign workshops conducted remotely via video conferencing. The workshops were supported with briefing material and generated consensus‐based summaries, arriving at a preferred service model. Findings This paper reports the research design and structure of the codesign panels, the range of findings identified as important to support the health and well‐being of older carers of older people, and the resulting service model principles. The codesigned and preferred model of care is currently being prepared for implementation and evaluation in Australia. Public Contribution This study was conducted using codesign methodology, whereby stakeholders including older care partners and others involved in supporting older carers, were integrally involved with design, development, results and conclusions. Keywords: carer, clinic, health, model of care, partnership, wellbeing

CITATION EXPORT

Natasha Layton, Aislinn Lalor, Susan Slatyer et al.. Who cares for the carer? Codesigning a carer health and wellbeing clinic for older care partners of older people in Australia. Health Expectations : An International Journal of Public Participation in Health Care and Health Policy. (2023). https://doi.org/10.1111/hex.13863

AUTHORS

13 · 12 CENTRES

Natasha Layton, Aislinn Lalor, Susan Slatyer, Den‐Ching A Lee, Christina Bryant, Moira Watson, Anjali Khushu, Elissa Burton, Déborah Oliveira, Natasha L Brusco, Alessandro Jacinto, Elizabeth Tiller, Keith D Hill

1 Rehabilitation, Ageing and Independent Living (RAIL) Research Centre, Monash University, Frankston, Victoria, Australia
2 National Centre for Healthy Ageing, Monash University and Peninsula Health, Frankston, Victoria, Australia
3 Department of Occupational Therapy, School of Primary and Allied Health Care, Monash University, Melbourne, Victoria, Australia
4 Centre for Healthy Ageing, Murdoch University, Murdoch, Western Australia, Australia
5 Melbourne School of Psychological Sciences, University of Melbourne, Melbourne, Victoria, Australia
6 Department of Geriatric Medicine, Peninsula Health, Frankston, Victoria, Australia
7 Curtin School of Allied Health, Curtin University, Bentley, Western Australia, Australia
8 enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Western Australia, Australia
9 Faculty of Nursing, Universidad Andrés Bello, Campus Viña del Mar, Viña del Mar, Chile
10 Millennium Institute for Care Research (MICARE), Santiago, Chile
11 Programa de Pós‐Graduação em Medicina Translacional, Faculty of Geriatric Medicine, Federal University of São Paulo (UNIFESP), São Paulo, Brazil
12 Department of Geriatrics (Falls Prevention Service), Peninsula Health, Frankston, Victoria, Australia